ARA Database

 


Australian Rheumatology Association Database  
A R A D

ARAD is a national Australian database which collects important health information from individuals with inflammatory arthritis such as:

Rheumatoid arthritis
Ankylosing spondylitis
Juvenile arthritis
Psoriatic arthritis

The ARAD website is: www.arad.org.au

This site contains the information, publications and newsletters (and more) that was previously available on this page.

  Currently funded by: NHMRC Enabling Grant
Supported by:
Monash University
Cabrini Health

with additional funding through Educational Grants to the ARA from:

Abbott Australasia Pty Ltd
Roche Products Pty Ltd
Pfizer Australia Pty Ltd
MSD Pty Ltd

Previous educational grants were provided to the ARA by:
Amgen Australia Pty Ltd
Aventis

             

 

DATABASE UPDATE: FEBRUARY 2012

At 1st February 2012, 3028 participants are completing questionnaires and Table 1 below summarises the characteristics of the ARAD cohort who have ever answered a questionnaire as at 1/2/12. Most participants who decide to no longer answer questionnaires have agreed to allow ARAD access to their medication records through Medicare Australia. There are 1632 participants who have agreed to this tracking.

Table 1: ARAD Participants at the last questionnaire/tracking date*

Diagnosis

bDMARD

RA

AS

PsA

JIA

AOSD

Total

etanercept

843

156

97

58

0

1154

adalimumab

650

160

125

14

0

949

rituximab

153

0

1

0

0

154

infliximab

60

129

20

3

0

212

abatacept

127

0

1

1

0

129

anakinra

5

0

0

3

1

9

tocilizumab

98

1

0

8

0

107

golimumab

76

33

14

0

0

123

Certolizumab pegol

30

0

0

0

0

30

No current bDMARD

759

76

52

14

0

901

Enrolled as controls

340

12

57

35

0

444

Total

3141

567

367

136

1

4212*

Awaiting consent

42

11

12

3

0

68
             

* Some patients have no data as yet.

Table 2: Referring rheumatologist activity

NSW

VIC

SA

WA

NT

QLD

ACT

TAS

TOTAL

Practicing Rheumatologist in Australia

107

82

33

31

2

41

7

8

311

Participating Rheumatologists in ARAD

83

67

28

23

2

31

6

6

246

Rheumatologists referring patients to ARAD (%)

78

82

85

74

100

76

86

75

79

Participating Rheumatologists in ARAD 2012

6

2

1

2

0

4

3

0

18

Rheumatologists referring patients to ARAD in 2012 (%)

6

2

3

6

0

10

43

0

6

Paediatric Rheumatologist

4

4

1

3

0

4

1

1

18

No. of patients referred to ARAD  in 2012

7

3

1

2

0

5

4

0

22

No. of new patients in January

7

3

1

2

0

5

4

0

22

No. of new JIA patients in January

0

0

0

0

0

0

0

0

0

* Data reported to the ARA and correct at December 2011.

For more charts on the population of ARAD please click here (ARAD Population January 2010)

Please continue enrolling CONTROL patients (i.e. patients with inflammatory arthritis who have not received biological therapy).
To enrol a CONTROL patient, simply complete the 'Rheumatologists: Permission to Contact form' in the same manner as non-control patients.

Rheumatologists are urged to continue enrolling ALL patients, see the “Rheumatologists – what do I need to do?”.

We would like to thank all participants and participating rheumatologists for their continuing support of ARAD.

 
  ARAD PROJECT TEAM
  Investigators
  Professor Rachelle Buchbinder
  Professor Lyn March
  Professor Marissa Lassere
  Professor Christopher Reid

   State coordinators
  QLD, WA, NT & TAS
  Lyndall Henderson
  e: lyndallh@med.usyd.edu.au
  Tel: 02 9926 8579
  Fax: 02 9906 1859

  NSW & ACT
  Tel: 02 9113 2982
  Fax: 02 9588 1156

  VIC & SA
 Joan McPhee
  e: Joan.McPhee@monash.edu
  Tel:(03) 9508 1137
  Fax: 03 9508 1368

  Data Centre Staff
    Vibhasha Chand
Harriet Carruthers
  Nino Hay
  Fax: 1800 022 730
  http://www.ccretherapeutics.org.au/

Further Information
  Participating Members Information
  Includes:
- ARA 2010 Conference Presentation on bDMARD use.
- Participating Members List
- ARAD 6-Monthly Report
- Adverse Event Reporting for ARAD patients taking bDMARDs
- Spreadsheet to track patients taking bDMARDs


Page updated 1 February 2012